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20/10/2011

October charity campaign with spokesman Matteo Marzotto

October charity campaign with spokesman Matteo Marzotto

AN SMS TO HELP THEM BREATHE AND A PROFUSION OF CYCLAMENS TO HELP RESEARCHERS CURE THEM

SATURDAY 22 AND SUNDAY 23 OCTOBER THE FLOWER THAT'S THE SYMBOL OF CYSTIC FIBROSIS RESEARCH WILL BRIGHTEN UP ITALY: CYCLAMENS IN 400 TOWN SQUARES. THE PROCEEDS WILL SUPPORT 26 NEW SCENTIFIC PROJECTS

From October 16 to 31 you can support CF research by sending SMS Charity Donations worth 2 euro to the number 45502 (Tim, Wind, Vodafone, 3, CoopVoce, Postemobile, Tiscali) or by calling the same number, 45502, from a landline (Telecom Italia, Infostrada, Fastweb and Teletu)

As part of this charity drive, an appeal by Matteo Marzotto, co-founder and vice-chairman of the Foundation, will be broadcast during the campaign. The ad will be shown in Italian cinemas belonging to the Sipra circuit, on the Telesia TV channel, which is broadcast in the Rome and Milan Metro systems, and in 12 national airports, on a total of 492 screens. Posters advertising the press and video campaign will be displayed at Verona Airport, thanks to the airport's management and to Telesia, a subsidiary of Class Editori.

In order to boost the fundraising activities for research, on Saturday 22 and Sunday 23 October a "Cyclamen for a Cure" will be available in more than 400 town squares throughout Italy. What's more, there'll be a special occasion in Turin: on Saturday 22 October Matteo Marzotto will participate alongside volunteers in the city's central Piazza Castello. The aim is to raise awareness about the genetic disease which causes breathing difficulties and halves normal life expectancy. In Italy alone there are more than two and a half million healthy carriers of the CFTR mutated gene. An exciting event is to take place the same evening: "Chef for a Night", organised in partnership with the "Piazza dei Mestieri" Foundation, during which Matteo Marzotto will be turning his hand to cookery alongside other special guests.

Starting in the second half of October, the spotlight is on cystic fibrosis, the most widespread serious genetic illness, of which there are 200 new cases each year in Italy: every week, 4 new sufferers are born. The number of healthy carriers is considerable: one person in 25, and they are often unaware of being a carrier. When both partners in a couple are carriers, there is a 1 in 4 probability that their child will be born with cystic fibrosis. In the past twenty years, research has led to an improvement in the quality and length of life of people with CF, which was once considered a "childhood disease". However, unfortunately it is still a "time bomb" disease which never goes away: in fact, it halves normal life expectancy, as well as causing terrible suffering on a daily basis.

The Foundation for Cystic Fibrosis Research, set up 14 years ago in Verona, has forged links with researchers, institutes, medical groups and volunteers, setting up a research network which, in just a few years, has helped to improve daily life for CF sufferers; it has also put down solid foundations in molecular research, so much so that Italy is now playing a key role in the battle against this disease. So far, the Foundation has financed 192 projects, involving more than 400 Italian researchers, and 164 laboratories and research centres.

Donating with confidence. The Foundation volunteered to undergo an assessment process which led to its being awarded the Carta della Donazione (Charter of Donation) certification, since it operates according to the criteria of efficiency, transparency, credibility and honesty. This has allowed it to become one of the small number of Italian organisations recognised as having these characteristics by the Istituto Italiano della Donazione (IID – Italian Institute for Donation). Each year it undergoes specific assessments to ensure that it maintains the high standards of the Institute, and can use the "Donare con fiducia" ("Donate with Confidence") brand, a guarantee for donors. The Foundation's website www.fibrosicisticaricerca.it has been awarded the HON certification for reliability of medical information.